The same ammo as every Monday.
Pressure vest? Check
Stroller? Check
Toys, books, wax candy? Check, check and check
Get there by the 11 o'clock appointment time? Why the hell bother but, check.
OT 15 minutes late for the appointment and send someone up to say she had a kid in a meltdown? Uh huh, what is she doing to this kid?
My kid in meltdown mode because his therapist has exhausted his patience? Yep, and he has hit his foot and is escalating to flight mode.
I have my suspicions about OT's being of the late persuasion. His last OT was always late and now this one is. I should just expect it by now but it still irritates me. When he sees her he has already started to recover and grabs her hand. He was delighted that she didn't take him to the same old room but instead to the gym. On the way she apologizes and tells me all the things I should not be hearing about the patient before us.
I get right down to business, I am to report how he did the past week after the listening therapy. "Monday he did a couple of good things and then Wednesday and Thursday were pure hell. I was at a point that he was never going to listen to music again if I had any say over it."
"What happened Wednesday and Thursday?"
"Any type of redirection or reprimand was met with whatever was handy thrown at my head, or things within reach knocked off of cabinets. He would stand there looking straight at me and doing whatever came in to his mind that might make me upset!" I am almost in tears thinking about it.
"So what happened the rest of the week?"
"The rest of the week was filled with REALLY good stuff. More words, more sentences, and he was able to hum to tunes better, where as before he was so offbeat. He told his sister Turn light on. He asked me What are you doing? He has been having some small steps toward potty training. Most importantly at bedtime when he is patting my face and nose, he isn't pinching them off. It's like he is realizing his strength." Once again I am close to tears.
"So do you want to try the therapy again this week? I'll try a different CD this time and maybe that won't cause the problems he had last time." She waits looking at me for an answer while nightmares of Wednesday and Thursday come flashing back in my mind. Then I think of all the good things he accomplished and a wise statement from Mcewen at Whitterer on Autism, there is no such thing as a free lunch.
4 comments:
And boy, when Maddie is right, she really is right on target. No free lunch but a whole lot of trade-offs at times.
Ooo golly. I'm all discombobulated now.
But yes it always seems to be a trade off. I'm delighted to hear that you're being patted rather than having your nose removed.
Cheers dears
These things take time and sounds as though you are going in the right direction.
Jeni - Yes she is. Tradeoffs are good, sometimes.
Maddy - Sorry to discombobulate, prolly did it again today. lol. Yeah I am so glad I have been able to keep my nose in place this past week. Also no pancake makeup to hide scratches on my cheeks! Woohoo!
Casdok - Thanks, sometimes you just need to be told that you seem to be going in the right direction. There are so many things that different people would have you try.
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