I have lived here for 35 years and have always loved it and it had never really occurred to me that what I loved were the aesthetics not the underbelly of the beast. The deep parts of the good ol' boy politics that you don't get to see the ugliness of unless you need it on your side. As I sat with an agent that informed me that Connor was probably not severe enough for insurance to cover ABA, I was shocked. Well I was several things all at once; happy someone would say he wasn't severe enough for anything, enraged that there had to be a severity level for a proven treatment, and desperate that I might have reached another dead end.
"This is a last resort type thing. For those who are uncontrollable, the insurance wants to make sure you have tried everything else first." she informs me. He had showed too much cuteness, he didn't stay hidden or run and scream at the sound of her voice, he didn't lay in the floor crying and throwing a tantrum. I didn't look distraught or tired enough. He dared to look her in the eyes and smile at her! Grrr....Shape up and act like you have autism Connor!
I take a deep breath trying to grab a thought and wrestle it down. "So where are all the non last resort programs?" I ask. She looks at me with sad eyes and says "We are decades behind on autism treatments and the ABA around here is the watered down version. Their are no other programs to get you the treatment other then private funding. This is only in place for the time being because we can not get the state autism bill through yet."
I look at her in disbelief and shock and she replies, "Welcome to Kentucky."